REAL TALK
This is a space to tell it like it is. The messy, funny, exhausting, and sometimes absurd reality of living ordinary life with other sh*t going on.
This is for people who know what it's like to carry something invisible.
Letters to myself
You were free. Free to be whoever you wanted, within limits nobody had explained to you yet, and free to make some genuinely questionable calls along the way.
Things People With Invisible Illness Wish others Knew
We know they mean well. We know the questions come from love, and the suggestions come from wanting to help, and the silence sometimes comes from not knowing what to say. We get it. This is hard to understand from the outside because from the outside, we often look completely fine.
The One You'd Never Expect
Because depression doesn't always look like not getting out of bed. Sometimes it looks like the funniest person in the room.
You're Going to Get It Wrong (And That's Not the Whole Story)
Here is something nobody tells the people on the other side of chronic illness: this is hard for you too, and you're allowed to say so.
The Overwhelm of a Fresh Diagnosis
Because the pit you fall into after a diagnosis is real… and it doesn’t get talked about nearly enough.
The Night I Fished My TENS Machine Out of a Toilet at a Gig
I'd spent the day being careful. Resting, eating well, not overdoing it. The whole strategic pre-event routine that I've slowly built up and that my younger self would have absolutely mocked me for.
The Sorry Text I Wrote Seven Times Before Sending
You wake up and you know immediately. Before you’ve looked at your phone or thought about the day ahead, your body has already filed its report.
I WENT FOR A BIG WALK (WOW)
Chronic illness has a way of quietly shrinking your world if you're not careful, and I'd been watching mine get a little smaller.
On Working When Your Body Has Other Plans
I’m almost a year into being self-employed. And some days I want to burn the whole thing down, not because I don’t love it, I do, genuinely, deeply, but because being a perfectionist with a chronic illness is its own specific kind of exhausting.